Australia

• Interstitial Cystitis Support Group of Australia
  Chairman: Alice Terry
  P.O. Box 767, Kingswood
  2747 New South Wales
  Australia

• Interstitial Cystitis Support Group
  Mercy Hospital for Women
  Clarendon Street,
  East Melbourne, 3002 Victoria
  Australia
  Contact: Christine Murray
  

cjmurray@mercy.com.au

Austria

• ICA Österreich e.V
  Chairman: Brigitte Annerl
  Irisweg 4
  4623 Gunskirchen,
  Austria
  

ica-austria@gmx.at

Belgium

• Interstitiële Cystitis Patiëntenvereniging België (ICPB)
  Chairman: Josee Van de Bergh-De Raa
  P. Benoitstraat 49
  1800 Vilvoorde
  Belgium
  Tel: 00-32-(0)2-253 93 44
  

info@icpb.be

Bolivia

• La Paz IC Support Group
  Contact: Maria Eulalia Anker
  Tel: 591-2-271-2761
  

eulalia@ceibo.entelnet.bo

Brazil

• Interstitial Cystitis Patient Support North East Brazil
  Contact person: Ariel Scafuri, MD
  Universidade Federal do Ceará
  Rua Republica do Libano, 88 apto 200
  Fortalexa, Ceará
  Brazil 60160-140
  tel: 55-8524239-99970367
  

uro@uol.com.br

Canada

• Association de la Cystite Interstitielle du Québec
  President: Françoise Robert
  14 Grand Coteau
  Ste-Julie (Québec)
  JOL 2SO Canada
  fax: 450-922-6498
  

frobert@videotron.ca

Czech
Republic

• Contact person: Libor Zamecnik, MD
  Urologicka Klinika
  VFN a 1. LF UK, Ke Karlovu 6
  128 08 Praha 2
  Czech Republic

libor.zamecnik@lf1.cuni.cz

Denmark

• IC support group
  President: Nanna Toernquist
  Oester Stationsvej 19
  2960  Rungsted Kyst
  Denmark
  member phone: +45 45763517

nt@dsb.dk

• Steinunn Joergensen (PBS/IC)
  Project Nurse
  Department of Urology
  Herlev Hospital, University of Copenhagen
  DK-2730 Herlev, Denmark

stjr@herlevhosp.kbhamt.dk

France

• Association Française de la Cystite Interstitielle
  Chairman: Françoise Watel
  82 rue Albert
  75013 Paris
  France

ci_france@hotmail.com

Germany

• ICA Deutschland e.V
  Untere Burg 21
  53881 Euskirchen
  Germany

India

• Contact person: Nagendra Mishra, MD
  2nd Floor, Karnavati Hospital Building
  Opp. Town Hall
  Ellisbridge
  Ahmedabad 380 006
  India

nagendraad1@yahoo.com 

• Interstitial Cystitis Patient Network - India
  Contact: Indu Mishra
  Tel: 0265-553-2656

moonlotus2001@yahoo.com

Italy

• Associazione Italiana Cistite Interstiziale
  Viale Glorioso 13
  00153 Rome
  Italy

AICI@mclink.it

Japan

• IC Tomonoki
  Chairman: Masako Katsurada
  1459-56, Funaki-Cho Oumihachiman
  Shiga 523-0084
  Japan
  tel/fax: 81-748.338222

perro@mx.biwa.ne.jp

• CUN (Comfortable Urology Network)

Kenya

• IC Support Group East Africa Naukuru Chapter
  Chairman: James Gathuthi Mwangi
  P.O. Box 16521
  Nakuru 20100
  Kenya

jgmwangi2003@yahoo.com

Mexico

• Asociación de Enfermedades Uro-Ginecologicas
  President: Florentina Ferreyra Lopez
  Circuito Circunvalacion Poniente No.10-A local 2-C
  Cd.Satelite,
  Naucalpan de Juarez,
  Edo de Mexico
  Mexico D.F. CP 05100
  tel: (52) 55 -53-74-36-91

info@asenug.org

Netherlands

• Interstitiele Cystitis Patiententenvereniging (ICP)
  Postbus 4
  3980 CA Bunnik
  tel: 030-293 296 5
  fax: 030-294 850 3
  

info@icpatienten.nl

New
Zealand

• Interstitial Cystitis Support Group NZICSG
  Chairman: Dot Milne
  P.O. Box 33-264
  Christchurch
  New Zealand
  tel: 03-347-9007

weedot@xtra.co.nz

Norway

• Norsk Forening for Pasienter med Urologiske Sykdommer (NOFUS)
  Chairman: Bernt Kvarstein MD

kvarste@online.no

Peru

• Contact person: Fernando Leon MD
  Lord Nelson 431, Miraflores
  Lima 18
  Peru
  tel: 511-441-8386/511-421-6022
  fax: 511-441-0276
  home: 511-445-3150

ferleon@terra.com.pe

Poland

• Contact person: Piotr Radziszewski MD
  Department of Urology
  Warsaw School of Medicine

pradziszewski@poczta.onet.pl

• IC Polska
  Group leader: Agnieszka Blazewicz

IC-Polska-owner@yahoogroups.com

Portugal

• Contact person: Paulo Dinis Oliveira MD
  Dept of Urology
  Hospital S. João
  4200 Porto
  Portugal
  tel (hospital): 351225512100

cruzfjmr@med.up.pt

Spain

• Associación Balear de Afectados por la Trigonitis, Síndrome Uretral y la Cistitis Intersticial ABATYCI
  President: Maria del Rosario Fernandez Garcia
  Calle Sineu 2 (Adosado C)
  07220 Pina, Mallorca
  tel: 971-66 53 22

abatycipina@hotmail.com

• Asociacion Catalana de Afectados de Cistitis Intersticial (ACACI)
  President: Monica Hernandez
  C/Pareto, 55 Atico 3a
  08902 L'Hospitalet de Llobregat
  Barcelona, Spain

Sweden

• ISOP (PBS/IC, prostatitis)
  Lennart Branthle

sm7gei@swipnet.se

United Kingdom

• The Cystitis & Overactive Bladder Foundation
  Chairman: Dawn Baty
  76 High Street, Stony Stratford
  Bucks MK11 1AH, United Kingdom
  tel: 44-1908-569169
  fax: 44-1908-565665
  

info@cobfoundation.org

• Interstitial Cystitis Association (ICA)
  President Vicki Ratner MD
  110 North Washington Street Suite 340
  Rockville MD 20850, USA

• National Vulvodynia Association
  PO Box 4491
  Silver Spring, MD 20914-4491
  301-299-0775 (phone)
  301-299-3999 (fax)
  

• NORD
  National Organization for Rare Disorders

• Prostatitis Foundation
  1063 30th Street Box 8
  Smithshire, Illinois 61478
  fax 309-325-7184
  voice mail 1-888-891-4200
  

 international

• European Federation of Crohn’s and Ulcerative Colitis Association
  Chairman: Rod Mitchell
  

rod.mitchell@infodor.fsnet.co.uk

• European Pain Network
  

• EURORDIS
  European Organization for Rare Diseases

• International Alliance of Patients' Organizations
  703 The Chandlery
  50 Westminster Bridge Road
  London SE1 7QY
  United Kingdom
  Tel: +44 20 7721 7508
  Fax: +44 20 7721 7596

info@patientsorganizations.org

• International Painful Bladder Foundation
  Burg. Le Fèvre de Montignylaan 73
  3055 NA Rotterdam
  The Netherlands
  Tel/fax : +31-10-4613330

• MICA
  

• Orphanet
  database on rare diseases and orphan drugs